Rethinking Biobanking! Between Laboratory Pragmatism, Deep-Freeze Logistics, and EHDS
TL;DR
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The 14th Biobanking Symposium highlighted gaps in standardization and consent for data processing. The planned European Health Data Space (EHDS) and electronic patient record (ePA) aim to advance medical research but face practical and ethical challenges regarding data protection and the right not to know.
Source: heise.de
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